"Such an underestimated and underfunded cause. Thank you for taking charge!"
"Such an underfunded and worthy cause . Thank you for taking on the charge!"
We are asking our key partners to rally their friends, family, and networks to support our work. By becoming a fundraiser for Wilson Disease Association, you will help more Wilson Disease patients everywhere, and you'll help your friends feel good about doing good.
Starting a fundraiser is easy to do, and it's fun. We'll even give you all the tools you'll need to make a difference. With your help we can ensure critical steps of our 5 year plan get completed. This fundraiser requires no parties, walks or selling anything. You just send it out to people that you know. We broke out two essential pieces of the Registry to fund. It is like taking baby steps. The cost of DNA sequencing of the ATP7B gene and other lab work for two years is $100,000. DNA sequencing for all enrolled in the registry will be performed at Dr. Sihoun Hahn's lab at the Seattle Childrens's Hospital in Seattle, Washington. All other lab tests collected will be tested at The Harrington Lab at the Royal Surrey County NHS Foundation Trust in Guildford, United Kingdom. Using only these laboratories will provide for a consistent collection of data.
This fundraiser makes it easy to help us get and keep the Registry going even if you are not able to host a Big Wow walk. If you live outside of the US, all currency is shown in US dollars but the payment processor is able to process foreign currencies. The last date to donate to either fund raiser is October 31, 2018.