September 29, 2018 @ 9:30AM — 10:30AM
The Samardzic walk/fund raiser for Wilson's Disease. Please consider a donation using the green button below.
with 2 guests
with 1 guest
There is usually parking across Beacon Street by the park, and sometimes in the lot for the reservoir entrance as well. There is plenty of street parking and metered spots at Cleveland Circle. See the park map below.
If you want to donate you can do so in the right hand side of this page.
If you want to order shirts or caps you can use the link below and your orders will be shipped to you directly.
Why do we do this?
Our daughter Katarina was diagnosed with Wilson's disease when she was only four years old. We were very fortunate that it was an early diagnosis, and the disease was caught and treated before severe symptoms started occurring.
The doctor that initially diagnosed my daughter has continued to care for her, and she has done an amazing job. Whether it's staying on top of the latest treatments, or discovering new devices that can help monitor and treat my daughters Wilson's disease, our doctor has done it all from the start, and we are immensely grateful for all the help that she has given us.
We feel that it is our mission to bring awareness that would, first lead to earlier diagnosis, then to help raise funds for the research to find safer treatments and finally a cure so that others will not suffer the devastating effects of this not-so-known disease.
We would like to be able to support patients and help their families through their journey.
Katarina just turned 18. This experience of getting diagnosed led to her career interest of health sciences, which she is going to study at Stonehill College starting this fall, September 2018.The Wilson Disease Association is a 501(c)(3) nonprofit corporation designated by the IRS. All donations are tax deductible and are being used exclusively to fund the patient registry. Donations can be made on our website at www.wilsondisease.org or in the right hand column.
You can support us by making a donation!