Big Wow Ridgely, Maryland

September 29, 2018 @ 9:00AM — 11:00AM

Our McNiece Family walk for Wilson's Disease. If you can't attend, please consider a donation using the green button below.

We need your help more than ever. Scroll down to read why.

There are currently no tickets available for this event, but you can still make a donation.

Share:

Attendees


If you want to donate you can do so in the right hand side of this page. This disease affects generations.

If you want to order shirts or caps and can't attend the walk you can use the link below and your orders will be shipped to you directly.

Click this link to order shirts and caps if you can't attend

Why do we do this?

Our journey with Wilson's started before our daughter, Sophie, was born. We underwent genetic screening following two miscarriages and discovered that my wife and I were both carriers of Wilson's. There was no family history of the disease, and neither one of us had heard about Wilson's prior to the testing.

Shortly after Sophie was born she was tested and was found to have both of our mutations. Currently (age 18 months), Sophie is managing well on a low copper diet and remains asymptomatic. She is being closely monitored by a hepatologist. Because of the rarity of her early diagnosis, he has been in contact with physicians around the world to discuss her treatment plan.

We are participating in the Big WOW to bring awareness to Wilson's Disease. We consider it a great blessing that we know her diagnosis now, and we hope to use that knowledge to educate others and raise funds for future research.

The Wilson Disease Association is a 501(c)(3) nonprofit corporation designated by the IRS. All donations are tax deductible and are being used exclusively to fund the patient registry. Donations can be made on our website at www.wilsondisease.org or in the right hand column.




Event Location

Martin Sutton Park
302 Fourth St
Ridgely, Maryland 21660
Get Directions

Can't Attend?

You can support us by making a donation!