September 29, 2018 @ 11:00AM — 2:00PM
Emilee William's walk for Wilson's Disease at Sequiota Park. If you can't attend, please consider a donation using the green button below.
with 4 guests
with 1 guest
Devon and Elizabeth Newport
with 1 guest
with 1 guest
3500 S Lone Pine Avenue
We will start the walk from the park's pavilion area and walk along the Galloway Creek Greenway and back to the pavilion.
Springfield, Missouri 65804
Sequiota has its own parking lot. The park is handicap accessible, and the trail is paved. We will start the walk from the park's pavilion area and walk along the Galloway Creek Greenway and back to the pavilion. Participants can walk at their own pace and determine how far they want to walk.
If you want to order shirts or caps and can't attend the walk you can use the link below and your orders will be shipped to you directly.
Why do we do this?
For the past five years, Emilee Williams (now 26 years old), has been struggling with Wilson's Disease. She graduated with honors from Rockhurst University in just three years. She received a bachelor's degree in Exercise and Sport Science and a minor in Spanish. She had just started her first semester of graduate school at Rockhurst University for her doctorate degree in physical therapy, when she was forced to withdraw because her symptoms became too severe to continue her coursework.
Emilee's symptoms started approximately three years prior to her diagnosis and included swelling of her legs and feet, mood and behavioral changes, a tremor in her right hand, muscle cramps, dystonia, slurred speech, and balance loss. Emilee and her family were determined to find the answers to her symptoms. Every doctor she went to said she suffered from anxiety and depression, however, none of the different antidepressants she was prescribed helped her symptoms. Emilee and her family kept looking for answers and asked for a neurologic work-up several times during the year prior to her diagnosis.
The final push for a neurologic work up came from her very own graduate school professors. Emilee's doctor finally ordered an MRI, which revealed the "panda face," and put her on the path to a correct diagnosis. The MRI's "panda face," lab results, and the presence of Kayser-Fleischer Rings in her eyes solidified the diagnosis.
Just one month after Emilee's correct diagnosis, she was hospitalized, where she spent 12 grueling weeks on the rehab floor, because she could no longer swallow, due to the neurologic damage in her brain. After having a feeding tube placement surgery, she was left with only a single voluntary movement – the ability to blink her eyes; blinking became her means of communication. Her life on the rehab floor and the next five years consisted of lots of physical therapy, occupational therapy, and speech therapy. Emilee's hard-work and fierce determination, accompanied by the support of her family, friends, caregivers and therapists, has allowed her to do things most doctors said she never would again.
Emilee's goal in life is to bring awareness to Wilson's Disease, to prevent others from having to go through what she did.
The Wilson Disease Association is a 501(c)(3) nonprofit corporation designated by the IRS. All donations are tax deductible and are being used exclusively to fund the patient registry. Donations can be made on our website at www.wilsondisease.org or in the right hand column.
You can support us by making a donation!