September 29, 2018 @ 1:00PM — 3:00PM
Our annual Cota Family walk for Wilson's Disease. If you can't attend, please consider a donation using the green button below.
with 3 guests
with 1 guest
An Event For The Whole Family!!! Right behind the skating building on the Leddy Green.open to all abilities. Refreshment's will be provided. Handicap accessible path. Restrooms or porta-potty will be available. The walk will be 1 mile on the paved bike path. There is plenty free parking in the large parking lot, very close to walk.Feel free to bring your dog..(all dogs must be leashed and bring poo bags please).
If you want to donate you can do so in the right hand side of this page.
If you want to order shirts or caps and can't attend the walk you can use the link below and your orders will be shipped to you directly.
Why do we do this?
For the past 10 years, Cassandra (now 27) has been struggling with the effects of Wilson's Disease. It affected her earlier than earlier than any of us realized. When she was a teenager,they gave her every antidepressant they had..none of them helped and as a result, she is allergic to all of them. When she entered college, was when the most serious problems started; gagging uncontrollably, slurred speech, no balance, wing beating tremors, no focus,fatigue, no hand control so she couldn't type her work. We were heading to the emergency room every day!!!!!! She carried a water bottle in her hands for 8 years..She couldn't keep anything down not even her meds.. Doctors didn't know what was wrong!!!!! We didn't either. She was disoriented and scared. She was in her 3rd year of gaming and animation studies when she had to stop. It was devastating. We went to the emergency room and did not leave until they found out what was wrong.!!!!! One time she saw a specialist who told us she did not have Wilson's disease because her liver was fine.!!! The copper managed to go through her liver and deposited in her brain which was causing all her problems. We were very surprised. We started chelation therapy. Trying to remove as much copper quickly. But her neurological system was greatly affected. 10 years now into this wd journey, they (the doctors) told us she wouldn't live past 8 years!! We are glad to report that after a lot of doctors medications and many battles because of them . We had to make up are own game plan !!!! She felt like she was dying on the chelator. After 5 years we went to chelated zinc and a tremor medication.and a strict diet. She has embraced exercise in her everyday life. Casandra has lost over 100 lbs and she is in the best shape of her life. She is looking forward to the future. I have another daughter who is pregnant. She didn't have Wilson's.. But the testing goes on. Our hope is to raise awareness of Wilson's disease, so to prevent future generations from the same devastating situation,early diagnosis is key.
Note to Readers: Chelators are compounds that copper will bind to and then be eliminated from the body. Chelation is a process that must be managed carefully to avoid even more problems.
The Wilson Disease Association is a 501(c)(3) nonprofit corporation designated by the IRS. All donations are tax deductible and are being used exclusively to fund the patient registry. Donations can be made on our website at www.wilsondisease.org or in the right hand column.
You can support us by making a donation!